Abbott, Janice (2009) Health-related quality of life measurement in cystic fibrosis: advances and limitations. Chronic Respiratory Disease, 6 (1). pp. 31-41. ISSN 1479-9723
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Official URL: http://dx.doi.org/10.1177/1479972308098159
Health-related quality of life (HRQoL) measurement in cystic fibrosis (CF) allows the inclusion of the patient’s perspective in research and clinical practice. HRQoL scales have been used for many purposes and this review focuses on how HRQoL measurement has been implemented in CF research and care. Specifically, the review considers 1) the instruments used to measure HRQoL, 2) the factors that influence how people report HRQoL, 3) the monitoring of HRQoL in clinical practice, 4) HRQoL as an outcome measure in interventions and clinical trials and 5) whether HRQoL can predict survival. The challenge for the future is to use the available information to develop and evaluate psychological interventions that would be expected to improve HRQoL in children and adults with CF.
|Uncontrolled Keywords (separate with ;):||cystic fibrosis; health-related quality of life; patient-reported outcome|
|Subjects:||Biological sciences > Psychology|
|Schools:||College of Science and Technology > School of Psychology|
|Deposited By:||Helen Cooper|
|Deposited On:||23 Jun 2011 15:50|
|Last Modified:||09 Aug 2016 15:13|
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