Benjamin, Caroline, Booth, Katie and Ellis, Ian (2003) A prospective comparison study of different methods of gathering self-reported family history information for breast cancer risk assessment. Journal of Genetic Counseling, 12 (2). pp. 151-170. ISSN 1059-7700
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Official URL: http://dx.doi.org/10.1023/A:1022611307167
Currently there is much debate regarding the ability of mathematical models incorporating epidemiological information or mutation-based risk algorithms to accurately predict a woman's risk of developing breast cancer. Without access to accurate family history information these models have limited use. This study compares different methods of gathering family history information and the impact on subsequent risk assessment. These methods were compared to the "gold standard" interview with a trained genetics' professional. The amount and accuracy of information provided by primary care doctors' letters was found to be poor and better information was obtained by sending a postal questionnaire directly to the patient. Because of the high number of low-risk women referred to clinic a questionnaire (the FCAT) was designed to provide reassurance and piloted as part of this study. This paper highlights the importance of using appropriate methods to gather the family history information. It presents evidence for the importance of a skilled assessor and the need to allow time for women to discuss the importance of this information with their family.
|Uncontrolled Keywords (separate with ;):||Blinded prospective comparison study; Breast cancer; Genetic counselling; Nursing; Primary care; Risk assessment|
|Subjects:||B - Subjects allied to medicine > B700 - Nursing|
|Schools:||Faculty of Health and Wellbeing > School of Nursing|
|Deposited By:||Simone Finley|
|Deposited On:||10 Jul 2013 10:05|
|Last Modified:||09 Aug 2016 15:18|
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