Hunt, Anne and Hacking, Suzanne (2014) "Why does it happen like this?". Consulting with users and providers prior to an evaluation of services for children with life-limiting conditions and their families. Journal of Child Health Care .
This is the latest version of this item.
Digital ID: JCHC_2013_0024_R2
Background: Children with life-limiting conditions and their families have complex needs. Evaluations must consider their views and perspectives to ensure care is relevant, appropriate and acceptable.
Aims: We consulted with children, young people, their parents and local professionals to gain a more informed picture of issues affecting them prior to preparing a bid to evaluate services in the area.
Design: Multiple methods included focus groups, face-to-face and
telephone interviews and participatory activities. Recordings and products from activities were analysed for content to identify areas of relevance and
Results: An overarching theme from parents was “Why does it happen like this?” Services did not seem designed to meet their needs. Whilst children and young people expressed ideas related to quality of environment,services and social life, professionals focused on ways of meeting the
families’ needs. The theme that linked families’ concerns with those of professionals was ‘assessing individual needs’. Two questions to be addressed by the evaluation are: (1) to what extent are services designed to meet the needs of children and families, and (2) to what extent are
children, young people and their families consulted about what they need?
Conclusion: Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation
Available Versions of this Item
"Why does it happen like this?". Consulting with users and providers prior to an evaluation of services for children with life-limiting conditions and their families. (deposited 13 Dec 2013 12:45)
- "Why does it happen like this?". Consulting with users and providers prior to an evaluation of services for children with life-limiting conditions and their families. (deposited 13 Dec 2013 14:15) [Currently Displayed]
|Subjects:||B - Subjects allied to medicine > B730 - Children's nursing|
B - Subjects allied to medicine > B700 - Nursing
|Schools:||Faculty of Health and Wellbeing > School of Health Sciences|
|Deposited By:||Anne Hunt|
|Deposited On:||13 Dec 2013 14:15|
|Last Modified:||24 Oct 2016 05:18|
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