Exploring the acceptability and feasibility of patient initiated follow up for women treated for stage I endometrial cancer

Beaver, Kinta orcid iconORCID: 0000-0002-6552-2323, Martin-Hirsch, Pierre, Williamson, Susan orcid iconORCID: 0000-0002-9635-4473 and Kyrgiou, Maria (2020) Exploring the acceptability and feasibility of patient initiated follow up for women treated for stage I endometrial cancer. European Journal of Oncology Nursing, 44 (101704). ISSN 1462-3889

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Official URL: https://doi.org/10.1016/j.ejon.2019.101704


There is a strong shift away from hospital-based approaches to follow-up after active treatment for cancer with supported self-management being promoted as an approach to long term recovery. We aimed to determine the acceptability and feasibility of patient-initiated follow-up (PIFU), supported by a self-management approach, for patients treated for Stage I endometrial cancer.

A mixed methods study was undertaken. Participants were asked to forego hospital outpatient follow-up appointments, supported by a self-management approach. Outcome measures included satisfaction with information and service, psychological morbidity, quality of life and preferences for follow-up. Qualitative interviews were carried out with study participants to determine their views on follow-up in general and PIFU in particular.

We recruited 17 patients. High levels of satisfaction were evident with no physical or psychological detriment. Self-management was a favoured option. Participants questioned the value of hospital follow-up and were willing to engage in self-management if they knew who to contact if they had a problem and were aware of the signs and symptoms of recurrence. However, uptake to the study was low and further work is needed to explore if recruitment to a randomised controlled trial (RCT) is a viable option.

Alternative approaches to hospital-based follow-up need to demonstrate that patients feel supported, knowing what symptoms to report and to whom. This study shows acceptability of a supported self-management approach but raises some concerns about the feasibility of recruitment to a future RCT.

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