Medical Futility: Interdisciplinary and International Perspectives

Choong, Kartina Aisha orcid iconORCID: 0000-0001-9407-1771 (2019) Medical Futility: Interdisciplinary and International Perspectives. Trivent Publishing, Budapest. ISBN 978-615-81353-0-6

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Official URL: https://trivent-publishing.eu/home/85-143-medical-...

Abstract

This book addresses the issues and challenges raised by the high-profile cases of Charlie Gard and Alfie Evans. The individual chapters, which complement one other, were written by scholars with expertise in Law, Medicine, Medical Ethics, Theology, Health Policy and Management, English Literature, Nursing and History, from the UK, Australia, Canada, the Czech Republic, France, Germany, India, Spain, Turkey and the USA.

The following are among the key questions explored in the book. Is the courtroom an appropriate forum for resolving conflicts relating to medical futility in paediatrics? If so, should parental rights be protected by confining judicial powers only to cases where there is a risk of significant harm to the infant; or should the “best interests” test continue to be recognised as the “gold standard” for paediatric cases? If not, should mediation be used instead, but how well would this alternative method of dispute resolution work for medical futility conflicts? Further, should social media be deployed to garner support, and should outsiders who are not fully acquainted with the medical facts refrain from intervening? And, how are comparable situations likely to be managed in different countries? What lessons can be learned from them as well as from religious perspectives?

Contents

Section title
Section author
Page
Table of Contents
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Foreword
Michael Redfern QC
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Preface
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Notes on Contributors
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Introduction - Charlie Gard and Alfie Evans: Their Medico-Legal Journeys
Kartina Aisha Choong
UNSPECIFIED
CHAPTER 1. The Vexed Question of Best Interests in Decisions Relating to Infants and Medical Futility
Jo Samanta
UNSPECIFIED
CHAPTER 2. Best Interests: The “Gold Standard” or a Gold Plating? Should Significant Harm be a Threshold Criterion in Paediatric Cases?
William Seagrim
UNSPECIFIED
CHAPTER 3. Charlie’s Law: Clarifying the Legal Standard to be Used in Medical Decision-Making for Children
Sarah Sargent
UNSPECIFIED
CHAPTER 4. Media Framing of “Medical Futility”: Flaming the Debate?
Kim McGuire
UNSPECIFIED
CHAPTER 5. Resource-intense Treatments in a Resource-finite Environment
Richard Wai Ming Law
UNSPECIFIED
CHAPTER 6. Citizenship at the Discretion of the State: Public Law Issues Regarding Evans’ Naturalisation
Alejandro Boto
UNSPECIFIED
CHAPTER 7. Contested Paediatric Palliative Care: A Church of England Perspective
Brendan McCarthy
UNSPECIFIED
CHAPTER 8. The Dynamics of Clinical Judgment, Religious Conventions and Parental Responsibilities: An Islamic Perspective
Mahmood Chandia, Abdulla al-Shami
UNSPECIFIED
CHAPTER 9. Do Parents Have a Right to Determine Where a Child Patient Dies?
Lisa Cherkassky
UNSPECIFIED
CHAPTER 10. Serving the Child’s “Best Interests” in Australia
Roslyn Jones
UNSPECIFIED
CHAPTER 11. Medical Futility in Czech Paediatrics: At the Edge of Law, Bioethics, and Medicine
Helena Krejčíková
UNSPECIFIED
CHAPTER 12. The Application of End-of-Life Legislation to Minors in France
Stephanie Rohlfing-Dijoux
UNSPECIFIED
CHAPTER 13. Patient Autonomy and Best Interests in End-of-Life Cases: A German Perspective
Peter Elsner
UNSPECIFIED
CHAPTER 14. Gard and Evans: A Reflection on What Might Happen in India
Abhay Vaidya, Sourabhi Sahakari
UNSPECIFIED
CHAPTER 15. Medical Futility and Parental Paternalism in Turkey
Banu Buruk, Berna Arda
UNSPECIFIED
CHAPTER 16. If We Can, Must We? Just Whose Best Interests Are We Talking About? Perspectives from the USA
Vincent F. Maher
UNSPECIFIED

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