Stories of People of Colour on Stigma, Racism and Severe Mental Distress

Abstract

This thesis presents a qualitative exploration of the experiences of persons of colour who carry the label of ‘schizophrenia,’ focusing on stigma, help-seeking behaviours, and the efficacy of anti-stigma campaigns. The research comprises four interconnected studies, all utilizing the Interpretative Phenomenological Analysis (IPA) method to delve deeply into participants' perspectives. This research explored individual experiences of persons of colour living with ‘schizophrenia,’ uncovering the complex nature of stigma through in-depth semi-structured interviews. Trauma, fear of racism, and cultural barriers emerged as prominent factors inhibiting mental health support-seeking. The qualitative approach enriches our understanding of the challenges faced by people of colour living with ‘schizophrenia.’

This research also explored relatives' perspectives of individuals who carry the label of ‘schizophrenia’ revealing the impact of stigma on help-seeking behaviours within the family context. Qualitative analysis of family narratives highlights the profound effects of stigma, shame, and discrimination on seeking support for loved ones. The study emphasizes addressing family needs in mental health interventions. Study three assesses the effectiveness of anti-stigma campaigns targeting mental health stigma related to ‘schizophrenia’ within persons of colour. Through qualitative methods, including participant interviews, the study unveils scepticism among persons of colour, perceiving campaigns as performative and disconnected from systemic issues.

Tailored campaigns resonating with diverse communities are underscored. Furthermore, the thesis studies innovative approaches to addressing mental health stigma, incorporating a focus group discussion and performance art piece within a community context. The qualitative analysis captures unique insights and audience responses to the performance. Creative qualitative methods contribute to understanding stigma and its effects on persons of colour with ‘schizophrenia.’

In conclusion, this thesis offers a qualitative exploration of stigma, help-seeking behaviours, and anti-stigma campaigns concerning ‘schizophrenia’ among persons of colour. Utilizing IPA in all studies delves deep into participants' lived experiences. Culturally sensitive interventions addressing multifaceted challenges faced by marginalized populations are highlighted in the thesis.

The research's implications extend to mental health service providers, policymakers, and campaign designers seeking to create inclusive and effective mental health support systems for diverse communities. Amplifying the voices of persons of colour with ‘schizophrenia’ contributes to a comprehensive understanding of mental health experiences within marginalized populations.