Items created by Abbott, Janice

2024

Altabee, Rana, Carr, Siobhan B., Abbott, Janice ORCID: 0000-0001-9851-1236, Cameron, Rory, Office, Daniel, Simmonds, Nicholas J., Whitty, Jennifer A., Turner, David and Barton, Garry (2024) Evaluating the correspondence between the EQ-5D-5L and disease severity and quality of life in adults and adolescents with cystic fibrosis. Respiratory Medicine and Research, 86 . p. 101137.

Altabee, Rana, Mwamba, Martin J, Turner, David, Davies, Gwyneth, Abbott, Janice ORCID: 0000-0001-9851-1236, Simmonds, Nicholas J., Whitty, Jennifer A., Carr, Siobhán B., Barton, Garry et al (2024) Measurement of treatment burden in cystic fibrosis: A systematic review. Journal of Cystic Fibrosis . ISSN 1569-1993 (In Press)

Cameron, Rory A., Matthews, Jessie, Office, Daniel, Rowley, Mark, Abbott, Janice ORCID: 0000-0001-9851-1236, Simmonds, Nicholas J., Whitty, Jennifer A. and Carr, Siobhán B. (2024) Health state utilities associated with treatment burden in cystic fibrosis: a patient valuation study. CHEST Pulmonary . (In Press)

2023

Altabee, R., Carr, S.B., Abbott, Janice ORCID: 0000-0001-9851-1236, Cameron, R., Office, D., Simmonds, N.J., Whittey, J.A., Turner, D. and Barton, G. (2023) Comparisons of the personal well-being score (PWS) and health-related quality of life for people with cystic fibrosis before and during the COVID-19 pandemic. Journal of Cystic Fibrosis, 22 (Sup2). S184-S185. ISSN 1569-1993

Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X, Chadwick, Helen and Peckham, Daniel (2023) Ways of coping and survival in Cystic Fibrosis: a 20-year longitudinal study. Journal of Cystic Fibrosis, 22 (1). pp. 112-118. ISSN 1569-1993

2022

Cameron, Rory A, Office, Daniel, Matthews, Jessie, Rowley, Mark, Abbott, Janice ORCID: 0000-0001-9851-1236, Simmonds, Nicholas J, Whitty, Jennifer A and Carr, Siobhán B (2022) Treatment preference amongst people with cystic fibrosis: the importance of reducing treatment burden. Chest, 162 (6). pp. 1241-1254. ISSN 1931-3543

Landau, E, Verkleij, M, Graziano, S, Quittner, A, Georgiopoulos, A, Smith, B, Schechter, M and Abbott, Janice ORCID: 0000-0001-9851-1236 (2022) Mental health screening in Cystic Fibrosis as an intervention: Patient and caregiver feedback on improving these processes. Respiratory Medicine, 202 . ISSN 0954-6111

Greenwood, Leah Charlotte ORCID: 0000-0001-6193-0867, Ireland, Jane Louise ORCID: 0000-0002-5117-5930, Abbott, Janice ORCID: 0000-0001-9851-1236, Chu, Simon ORCID: 0000-0001-8921-4942 and Niesten, Isabella (2022) Understanding the sleep-aggression relationship in a forensic mental health sample. International Journal of Law and Psychiatry, 83 .

Altabee, Rana, Carr, Siobhan, Abbott, Janice ORCID: 0000-0001-9851-1236, Cameron, Rory, Office, Daniel, Matthews, Jessie, Simmonds, Nicholas, Cosgriff, Rebecca, Turner, David et al (2022) Exploring the nature of perceived treatment burden: a study to compare treatment burden measures in adults with cystic fibrosis. NIHR Open Research .

2021

Smith, Beth A, Georgiopoulos, Anna M, Mueller, Amy, Abbott, Janice ORCID: 0000-0001-9851-1236, Lomas, Paula, Aliaj, Enid and Quittner, Alexander A (2021) Impact of COVID-19 on mental health: Effects on screening, care delivery, and people with cystic fibrosis. Journal of Cystic Fibrosis, 20 (3). pp. 31-38. ISSN 1569-1993

Teh, Lee-Suan, Castelino, Madhura, McElhone, Kathleen and Abbott, Janice ORCID: 0000-0001-9851-1236 (2021) Assessment of Health-Related Quality of Life in Systemic Lupus Erythematosus. In: Outcome Measures and Metrics in Systemic Lupus Erythematousus. Springer, pp. 229-249. ISBN 978-3-030-73302-5

Chadwick, Helen K, Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X, Dye, Louise, Lawton, Clare L, Mansfield, Michael W and Peckham, Daniel (2021) Cystic fibrosis-related diabetes (CFRD) and cognitive function in adults with cystic fibrosis. Journal of Cystic Fibrosis . ISSN 1569-1993

2020

McElhone, Kathleen, Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X, Burnell, Jane ORCID: 0000-0002-4601-1632, Lanyon, Peter, Rahman, Anisur, Yee, Chee-Seng, Akil, Mohammed, Bruce, Ian et al (2020) Flares in patients with Systemic Lupus Erythematosus (SLE). Rheumatology, 60 (7). pp. 3262-3267. ISSN 1462-0324

Quittner, A, Abbott, Janice ORCID: 0000-0001-9851-1236, Hussain, S, Ong, T, Uluer, A, Hempstead, S, Lomas, P and Smith, B (2020) Integration of mental health screening and treatment into cystic fibrosis clinics: Evaluation of initial implementation in 84 programs across the United States. Pediatric Pulmonology . ISSN 8755-6863

2019

Hodgkinson, Alison, Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X, Lowe, Nicola M ORCID: 0000-0002-6934-2768 and Qualter, Pamela (2019) An educational intervention to prevent overweight in pre-school years: a cluster randomised trial with a focus on disadvantaged families. BMC Public Health, 19 (1430).

Abbott, Janice ORCID: 0000-0001-9851-1236, Havermans, T., Jarvholm, S., Landau, E., Prins, Y., Smrekar, U., Staab, D., Verity, L. and Verkleij, M. (2019) Mental Health screening in cystic fibrosis centres across Europe. Journal of Cystic Fibrosis, 18 (2). pp. 299-303. ISSN 1569-1993

2018

Abbott, Janice ORCID: 0000-0001-9851-1236 (2018) Patient-reported outcomes: Time for a new approach? [Editorial]. Elsevier.

Qualter, Pamela, Hurley, Ruth, Eccles, Alice ORCID: 0000-0002-1618-4436, Abbott, Janice ORCID: 0000-0001-9851-1236, Boivin, Michael and Tremblay, Richard Ernest (2018) Reciprocal Prospective Relationships Between Loneliness and Weight Status in Late Childhood and Early Adolescence. Journal of Youth and Adolescence, 47 (7). pp. 1385-1397. ISSN 0047-2891

Verkleij, Marieke, de Winter, Derek, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X and Abbott, Janice ORCID: 0000-0001-9851-1236 (2018) Implementing the International Committee on Mental Health in Cystic Fibrosis (ICMH) Guidelines: Screening accuracy and referral-treatment pathways. Journal of Cystic Fibrosis . ISSN 1569-1993

2017

Lewis, Michael ORCID: 0000-0001-5567-3569, Ireland, Jane Louise ORCID: 0000-0002-5117-5930, Abbott, Janice ORCID: 0000-0001-9851-1236 and Ireland, Carol Ann ORCID: 0000-0001-7310-2903 (2017) Initial development of the Psychopathic Processing and Personality Assessment (PAPA) across populations. International Journal of Law and Psychiatry, 54 . pp. 118-132. ISSN 0160-2527

2016

McElhone, Kathleen, Abbott, Janice ORCID: 0000-0001-9851-1236, Sutton, Chris J ORCID: 0000-0002-6406-1318, Mullen, Montana Tiffaine, Lanyon, Peter, Rahman, A, Yee, Chee-Seng, Akil, Mohammed, Bruce, Ian et al (2016) Sensitivity to Change (Responsiveness) and Minimal Important Differences of the LupusQoL in patients with Systemic Lupus Erythematosus. Arthritis Care & Research, 68 (10). pp. 1505-1513. ISSN 2151-464X

Hurley, Margaret Anne ORCID: 0000-0002-2502-432X, Abbott, Janice ORCID: 0000-0001-9851-1236, Morton, Alison M and Conway, Steven P (2016) Longitudinal and cross-sectional modelling of health related quality of life in people with cystic fibrosis. Statistica Applicata - Italian Journal of Applied Statistics, 27 (1). pp. 57-74. ISSN 1125-1964

Hunt, Anne, Carter, Bernie ORCID: 0000-0001-5226-9878, Abbott, Janice ORCID: 0000-0001-9851-1236, Parker, Arija Nikola ORCID: 0000-0003-4553-0331, deGoede, Christian and Spinty, Stefan (2016) Pain experience, expression and coping in boys and young men with Duchenne muscular dystrophy – a pilot study using mixed methods. European Journal of Paediatric Neurology, 20 (4). pp. 630-638. ISSN 1090-3798

2015

Quittner, Alexandra, Abbott, Janice ORCID: 0000-0001-9851-1236 and Georgiopoulos, Anna (2015) International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety. Thorax, 71 (26). pp. 26-34. ISSN 0040-6376

Abbott, Janice ORCID: 0000-0001-9851-1236 and Bilton, Diana (2015) Adherence to Ivacaftor is suboptimal. Journal of Cystic Fibrosis, 14 (5). pp. 547-548. ISSN 1569-1993

Abbott, Janice ORCID: 0000-0001-9851-1236, Elborn, J.S., Georgiopoulos, A.M., Goldbeck, L., Marshall, B.C., Sabadosa, K.A., Smith, B.A. and Quittner, A.L. (2015) Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery. Journal of Cystic Fibrosis, 14 (4). pp. 533-539. ISSN 15691993

Abbott, Janice ORCID: 0000-0001-9851-1236, Morton, Alison, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X and Conway, Steven (2015) Longitudinal impact of demographic and clinical variables on Health-Related Quality of Life in Cystic Fibrosis. British Medical Journal (BMJ), 5 . e007418. ISSN 0959-8138

Qualter, Pamela, Murphy, Suzanne M., Abbott, Janice ORCID: 0000-0001-9851-1236, Gardner, Kathryn J., Japel, Christa, Vitaro, Frank, Boivin, Michel and Tremblay, Richard E. (2015) Developmental associations between victimization and body mass index from 3 to 10 years in a population sample. Aggressive Behavior, 41 (2). pp. 109-122. ISSN 0096-140X

McCourt, Fiona, O'Neill, Brenda, Logan, Ian, Abbott, Janice ORCID: 0000-0001-9851-1236, Plant, Barry, McCrum-Gardner, Evie, McKeown, Stephanie, Stuart Elborn, J and Bradley, Judy M (2015) Indicators of pulmonary exacerbation in cystic fibrosis: A Delphi survey of patients and health professionals. Journal of Cystic Fibrosis, 14 (1). pp. 90-96. ISSN 15691993

2014

Meacock, Rachel, Harrison, Mark, McElhone, Kathleen, Abbott, Janice ORCID: 0000-0001-9851-1236, Haque, Sahena, Bruce, Ian and Teh, Lee-Suan (2014) Mapping the disease-specific LupusQoL to the SF-6D. Quality of Life Research . ISSN 0962-9343

Quittner, A. L., Goldbeck, L., Abbott, Janice ORCID: 0000-0001-9851-1236, Duff, A., Lambrecht, P., Sole, A., Tibosch, M. M., Bergsten Brucefors, A., Yuksel, H. et al (2014) Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries. Thorax, 69 (12). pp. 1090-1097. ISSN 0040-6376

Duff, Alistair J.A., Abbott, Janice ORCID: 0000-0001-9851-1236, Cowperthwaite, Carolyn, Sumner, Clare, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X and Quittner, Alexandra (2014) Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: A cross-sectional study. Journal of Cystic Fibrosis, 13 (6). pp. 745-753. ISSN 15691993

2013

Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X, Morton, Alison M and Conway, Steven P (2013) Longitudinal association between lung function and health-related quality of life in cystic fibrosis. Thorax, 68 (2). pp. 149-154. ISSN 0040-6376

2012

Castelino, Madhura, Abbott, Janice ORCID: 0000-0001-9851-1236, McElhone, Kathleen and Teh, Lee-Suan (2012) Comparison of the psychometric properties of health-related quality of life measures used in adults with systemic lupus erythematosus: a review of the literature. Rheumatology, - (-). ---. ISSN 1462-0324

Abbott, Janice ORCID: 0000-0001-9851-1236, Holt, Alison, Morton, A.M., Hart, A., Milne, G., Wolfe, S.P. and Conway, S.P. (2012) Patient indicators of a pulmonary exacerbation: preliminary reports from children map onto those of adults. Journal of Cystic Fibrosis, 11 (3). pp. 180-186. ISSN 1569-1993

2011

Ogden, C.A., Akobeng, A.K., Abbott, Janice ORCID: 0000-0001-9851-1236, Aggett, P., Sood, M.R. and Thomas, A.G. (2011) Validation of an Instrument to Measure Quality of Life in British Children With Inflammatory Bowel Disease. Journal of Pediatric Gastroenterology & Nutrition, 53 (3). pp. 280-286. ISSN 0277-2116

Abbott, Janice ORCID: 0000-0001-9851-1236, Hart, Anna, Havermans, T., Matossian, A., Goldbeck, L., Barreto, C., Bergsten-Brucefors, A., Besier, T., Catastini, P. et al (2011) Measuring health-related quality of life in clinical trials in cystic fibrosis. Journal of Cystic Fibrosis, 10 (Supp2). S82-S85. ISSN 1569-1993

Brotherton, Ailsa M and Abbott, Janice ORCID: 0000-0001-9851-1236 (2011) Mothers' Process of Decision Making for Gastrostomy Placement. Qualitative Health Research, 22 (5). pp. 587-594. ISSN 1049-7323

2010

McElhone, K., Abbott, Janice ORCID: 0000-0001-9851-1236, Gray, J., Williams, A. and Teh, L-S. (2010) Patient perspective of systemic lupus erythematosus in relation to health-related quality of life concepts: a qualitative study. Lupus, 19 (14). pp. 1640-1647. ISSN 0961-2033

McElhone, Kathleen, Castelino, Madhura, Abbott, Janice ORCID: 0000-0001-9851-1236, Bruce, Ian N., Ahmad, Yasmeen, Shelmerdine, Joanna, Peers, Kate, Isenberg, David, Ferenkeh-Koroma, Ada et al (2010) The LupusQoL and Associations with Demographics and Clinical Measurements in Patients with Systemic Lupus Erythematosus. The Journal of Rheumatology, 37 (11). pp. 2273-2279. ISSN 0315-162X

2009

Abbott, Janice ORCID: 0000-0001-9851-1236, Havermans, Trudy and Hart, Anna (2009) Adherence to the medical regimen: clinical implications of new findings. Current Opinion in Pulmonary Medicine, 15 (6). pp. 597-603. ISSN 1070-5287

Abbott, Janice ORCID: 0000-0001-9851-1236, Holt, Alison, Hart, Anna, Morton, A.M., MacDougall, L., Pogson, M., Milne, G., Rodgers, H.C. and Conway, S.P. (2009) What defines a pulmonary exacerbation? The perceptions of adults with cystic fibrosis. Journal of Cystic Fibrosis, 8 (5). pp. 356-359. ISSN 1569-1993

Brotherton, Ailsa M and Abbott, Janice ORCID: 0000-0001-9851-1236 (2009) Clinical decision making and the provision of information in PEG feeding: an exploration of patients and their carers’ perceptions. Journal of Human Nutrition and Dietetics, 22 (4). pp. 302-309. ISSN 0952-3871

Abbott, Janice ORCID: 0000-0001-9851-1236 (2009) Health-related quality of life measurement in cystic fibrosis: advances and limitations. Chronic Respiratory Disease, 6 (1). pp. 31-41. ISSN 1479-9723

Abbott, Janice ORCID: 0000-0001-9851-1236, Hart, Anna, Morton, Alison M., Dey, Paola, Conway, Steven P. and Webb, A. Kevin (2009) Can Health-related Quality of Life Predict Survival in Adults with Cystic Fibrosis? American Journal of Respiratory and Critical Care Medicine, 179 (1). pp. 54-58. ISSN 1073-449X

2008

Monti, Fiorella, Lupi, Francesca, Gobbi, Francesca, Agostini, Francesca, Miano, Angelo, Gee, Louise and Abbott, Janice ORCID: 0000-0001-9851-1236 (2008) Validation of the Italian version of the Cystic Fibrosis Quality of Life Questionnaire (CFQoL), a disease specific measure for adults and adolescents with cystic fibrosis. Journal of Cystic Fibrosis, 7 (2). pp. 116-122. ISSN 15691993

Gee, Louise, Gobbi, Francesca, Lupi, Francesca, Monti, Fiorella, Miano, Angelo and Abbott, Janice ORCID: 0000-0001-9851-1236 (2008) Validation of the Italian version of the cystic fibrosis quality of life questionnaire (CFQoL), a disease specific measure for adults and adolescents with cystic fibrosis. Journal of Cystic Fibrosis, 7 (2). pp. 116-122. ISSN 1569-1993

Abbott, Janice ORCID: 0000-0001-9851-1236, Hart, Anna, Morton, Alison, Gee, Louise and Conway, Steven (2008) Health-related quality of life in adults with cystic fibrosis: The role of coping. Journal of Psychosomatic Research, 64 (2). pp. 149-157. ISSN 00223999

Ogden, Cassandra Anne, Abbott, Janice ORCID: 0000-0001-9851-1236, Aggett, Peter, Derkx, Bert H, Maity, Santanu and Thomas, Adrian G (2008) Pilot Evaluation of an Instrument to Measure Quality of Life in British Children With Inflammatory Bowel Disease. Journal of Pediatric Gastroenterology and Nutrition, 46 (1). pp. 117-120. ISSN 0277-2116

2007

Brotherton, Ailsa M, Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret Anne ORCID: 0000-0002-2502-432X and Aggett, P.J. (2007) Home Enteral Tube Feeding in Children following percutaneous endoscopic gastrostomy; Perceptions of Parents, Paediatric Dieticians and Paediatric Nurses. Journal of Human Nutrition and Dietetics, 20 (5). pp. 431-439. ISSN 09523871

Brotherton, Ailsa M, Abbott, Janice ORCID: 0000-0001-9851-1236 and Aggett, P. J. (2007) The Impact of Percutaneous Endoscopic Gastronstomy Feeding in Children; the Parental Perspective. Child: Care, Health and Development, 33 (5). pp. 539-546. ISSN 1365-2214

McElhone, Kathleen, Abbott, Janice ORCID: 0000-0001-9851-1236, Shelmerdine, Joanna, Bruce, Ian N., Ahmad, Yasmeen, Gordon, Caroline, Peers, Kate, Isenberg, David, Ferenkeh-Koroma, Ada et al (2007) Development and validation of a disease-specific health-related quality of life measure (LupusQoL) for adults with systemic lupus erythematosus. Arthritis Care and Research, 57 (6). pp. 972-979. ISSN 0893-7524

Brotherton, Ailsa M, Abbott, Janice ORCID: 0000-0001-9851-1236, Hurley, Margaret A. ORCID: 0000-0002-2502-432X and Aggett, Peter J. ORCID: 0000-0002-2502-432X (2007) Home Percutaneous Endoscopic Gastrostomy Feeding; Similarities and Differences in Perceptions of Patients, Carers, Nurses and Dietitians. Journal of Advance Nursing, 59 (4). pp. 388-397. ISSN 1365-2648

Abbott, Janice ORCID: 0000-0001-9851-1236, Morton, Alison M., Musson, Helen, Conway, Steven P., Etherington, Christine, Gee, Louise, Fitzjohn, Joan and Webb, A. Kevin (2007) Nutritional status, perceived body image and eating behaviours in adults with cystic fibrosis. Clinical Nutrition, 26 (1). pp. 91-99. ISSN 02615614

2006

Brotherton, Ailsa M, Abbott, Janice ORCID: 0000-0001-9851-1236 and Aggett, P.J. (2006) The impact of percutaneous endoscopic gastrostomy feeding upon daily life in adults. Journal of Human Nutrition and Dietetics, 19 (5). pp. 355-367. ISSN 09523871

2005

Gee, Louise, Abbott, Janice ORCID: 0000-0001-9851-1236, Hart, Anna, Conway, Steven P., Etherington, Christine and Webb, A. Kevin (2005) Associations between clinical variables and quality of life in adults with cystic fibrosis. Journal of Cystic Fibrosis, 4 (1). pp. 59-66. ISSN 15691993

Abbott, Janice ORCID: 0000-0001-9851-1236 and Hart, Anna (2005) Measuring and reporting quality of life outcomes in clinical trials in cystic fibrosis: a critical review. Health and Quality of Life Outcomes, 3 (3). ISSN 14777525

2003

Gee, L., Abbott, Janice ORCID: 0000-0001-9851-1236, Conway, S.P., Etherington, C. and Webb, A.K. (2003) Quality of life in adults with cystic fibrosis: the impact of gender and disease severity. Journal of Cystic Fibrosis, 2 (4). pp. 206-213. ISSN 1569-1993

2002

Gee, L., Abbott, Janice ORCID: 0000-0001-9851-1236, Conway, S. and Etherington, C. (2002) Validation of the SF-36 for the assessment of quality of life in adolescents and adults with cystic fibrosis. Journal of Cystic Fibrosis, 1 (3). pp. 137-145. ISSN 1569-1993

2001

Abbott, Janice ORCID: 0000-0001-9851-1236, Bauman, Ulrich, Conway, Steve, Etherington, Christine, Gee, Louise, Graf von der Schulenburg, Johann-Matthias and Webb, Kevin (2001) Cross cultural differences in Health related quality of life in adolescents with cystic fibrosis. Disability & Rehabilitation, 23 (18). pp. 837-844. ISSN 09638288

Abbott, Janice ORCID: 0000-0001-9851-1236, Dodd, Mary, Gee, Louise and Webb, Kevin (2001) Ways of coping with cystic fibrosis: implications for treatment adherence. Disability and Rehabilitation, 23 (8). pp. 315-324. ISSN 0963-8288